WHAT WENT WRONG WITH DOING GOOD? by C. Edwin Vaughan C. Edwin Vaughan, Ph.D., is a professor in the Department of Sociology at the University of Missouri in Columbia. As a sociologist and member of the National Federation of the Blind, he has thought much about the role of consumer organizations in the field of social service and welfare programs. Something clearly has gone wrong between the high-minded intentions of those who sought to do good and the establishment of the programs and services they created. Here is Ed Vaughan's brief analysis: Many of us have observed defensive, caustic, and even angry behavior displayed by some professionals and some agency personnel when confronted with consumer criticism or demands for increased consumer participation. Critics are frequently dismissed as misguided and certainly ungrateful for the contributions rehabilitation efforts have made in the lives of blind people. With so many professional organizations of workers for the blind, special programs informed by scientific research, and continual support from government and the public, how could anyone question the beneficence of these efforts? Isn't doing good always desirable? How can beneficence be mischievous or even harmful? David Rothman, a social historian at Columbia University, analyzes social programs that developed in the Progressive era in this country. Beginning around 1900, public energy and public money were organized to deal with a wide array of social problems. "In the history of American attitudes and practices toward the dependent, no group more energetically or consistently attempted to translate the biological model of the caring parent into a program for social action than the Progressives" (Rothman, 1978, p. 69). We will utilize his idea of benevolence as disguised power and draw examples from his analysis of several welfare programs to clarify the reason why many consumers resist efforts by those who would do them good. In the first two decades of this century, the needs of the poor and dependent were widely noted. As Rothman observes, the state as parent had much to accomplish. Everyone would benefit. There was a presumed unity of interests between the state and the several different types of needy citizens. Agents of the welfare state were so committed to a paternalistic model that they never concerned themselves with the potential of their programs to be as coercive as they were liberating. "In their eagerness to play parent to the child, they did not pause to ask whether the dependent had to be protected against their own well-meaning interventions. It was as if the benevolence of their motives, together with their clear recognition of the wretchedness of lower-class social conditions, guaranteed that ameliorative efforts would unambiguously benefit the poor" (ibid., p. 72). As Rothman notes, there was consensus around the values of scholars and reformers alike. Schools, settlement houses, and a wide array of social programs would bring the poor and immigrants into the mainstream of middle-class American life. Between 1900 and 1920 many of our contemporary social welfare programs had their origins, including child support, juvenile courts, and of course new and expanded programs to benefit blind people. The American Association of Workers for the Blind (AAWB) was organized in 1905 with a broad agenda which included employment, the welfare of elderly blind persons, boarding homes and other housing arrangements for blind adults, nurseries for blind babies, home teaching services for adults, and industrial education. The AAWB and the American Association of Instructors of the Blind (AAIB) grew, both in size and mutual concerns, and by 1921 jointly created the American Foundation for the Blind (AFB) as a new national resource for advancing their programs. What went wrong with the well-intentioned efforts of reformers to improve the lot of the poor, the widowed, the delinquent, the untutored immigrant, and the disabled? Since the aim of the state was to help the disadvantaged, there seemed no need to limit the power utilized for doing good. In each instance, therefore, enabling legislation and agency practice enhanced the prerogatives of state officials and reduced--and almost eliminated--legal protections and rights for those coming under their authority. To call the acts "widow pensions" was really a misnomer. The widows did not receive their allowance as a matter of right, the way a pensioner received his. Rather, the widow had to apply for her stipend, demonstrate her qualifications, her economic need, and her moral worth, and then trust to the decision of the welfare board. At their pleasure, and by their reckoning, she then obtained or did not obtain help. By the same token the juvenile court proceedings gave no standing to the whole panoply of rights that offenders typically enjoyed--from a trial by jury, to assistance from counsel, to protections against self-incrimination. There was nothing atypical about the juvenile court judge who openly admitted that in his Minnesota courtroom "the laws of evidence are sometimes forgotten or overlooked." So, too, probation officers were not bound by any of the restrictions that might fetter the work of police officers. They did not need a search warrant to enter a probationer's home, for as another juvenile court judge explained: "With the great right arm and force of the law, the probation officer can go into the home and demand to know the cause of the dependency or the delinquency of a child. He becomes practically a member of the family and teaches them lessons of cleanliness and decency, of truth and integrity." So caught up were reformers with this image of officer as family member that they gave no heed to the coercive character of their programs. To the contrary, they frankly declared that "threats may be necessary in some instances to enforce the learning of the lessons that he teaches, but whether by threats or cajolery, by appealing to their fear of the law or by rousing the ambition that lies latent in each human soul, he teaches the lesson and transforms the entire family into individuals which the state need never again hesitate to own as citizens." With the state eager and able to accomplish so beneficent a goal, there appeared no reason to restrict its actions. The prevalence of such judgments among Progressives practically blinded them to the realities that followed on the enactment of their proposals. Not only did they fail to see the many inadequacies that quickly emerged in day-to-day operations; worse yet, they could not begin to understand that the programs might be administered in the best interests of officials, not clients (ibid., pp. 78-79). One might say about many administrators of these programs that whatever else they did, they looked after the interests of their agencies and careers. Commenting on the history of original missionary families in Hawaii, wags have observed that they came to do good and stayed to do well. We now observe widespread cynicism about the claims of self-appointed caregivers. Do-gooders are suspect. To quote Rothman again, "Whereas once historians and policy analysts were prone to label some movements reforms, thereby assuming their humanitarian aspects, they [the scholars] are presently far more comfortable with a designation of social control, thereby assuming their coercive quality." Power and social control operate, in part, through organizational procedures and administrative discretion. We live in an age of regulations. Countless agency conferences are held to "interpret the regs." Administrators and their subordinates control resources and apply rules. Clients, patients, or students have few alternatives. Power relationships are one-sided. Even our government has recognized this condition by funding protection and advocacy programs to give independent legal assistance and other support to individuals challenging their treatment at the hands of the rehabilitation system. Fair hearing officers are now used to hear client appeals in several states. We have an acute distrust of discretionary authority. With the civil rights movement of the 1960s Rothman describes a trend evidenced in several different branches of the welfare rights movement. "The perspective is not the perspective of common welfare but the needs of the particular group. The intellectual premises are not unity but conflict. It is `us' versus `them'" (p. 90). Control and benevolent oversight have been self-consciously rejected and replaced with concerns about autonomy and civil rights. Do not deprive us of competitive employment; equal pay for equal work; opportunities for economic mobility because we are women, black, needing some medical intervention, poor, or blind. From the perspective of this liberty and human rights concern, rehabilitation or other programs that block freedom of choice must be removed and are, indeed, not solutions but parts of the problem. Expanding the liberty perspective, as Rothman notes, will not solve all of the problems of various minority interest groups. Legitimate needs remain. Appropriate education and opportunities for competitive employment are still essential elements of equal opportunity for blind people. Our concern, obviously, is not to promote neglect or to legitimate cruelty and suffering in the name of rights. How can we access opportunities and utilize the resources of publicly funded programs and yet avoid domineering, demeaning, dependency-creating relationships with agents of rehabilitation? How can the power imbalance be redressed? How can we avoid throwing away the baby with the bath water? How can we limit discretionary and arbitrary authority associated with publicly supported programs? "To this end, advocates of the liberty model are far more comfortable with an adversarial approach, an open admission of conflict of interest, than with an equality model with its presumption of harmony of interests" (p. 92). Would this human rights, liberty model be compatible with service and educational arrangements provided by experts, professionals, and public officials? Whenever publicly supported programs are needed, the recipients of benevolence must have a determinative voice in policy making and evaluation. If you will do good to me, it will have to be on my terms--or we must at least achieve agreement and mutual respect. Equitable service delivery requires full consumer participation. Such participation will not come from agency-selected individuals or self-appointed guardians of blind people, but from broadly-based, democratically elected representatives of organizations of blind people. By now you know the last sentence: That is why we have formed the National Federation of the Blind. References: Rothman, David "The State as Parent," Doing Good, by Willard Gaylin, et al. Pantheon Books, New York, NY, 1978.