>From the web page http://www.pluk.org/FS1.html First Steps A Parent Information Handbook Infant and Toddler Programs /Preschool Special Education Prepared By: Parents, Let's Unite for Kids (PLUK) in cooperation with Montana Developmental Disabilities Program Montana Office of Public Instruction EDITOR: Katharin A. Kelker, Ed.D. PRODUCTION: Roger Holt, ATP ILLUSTRATION: Karen Moses (c) Parents, Let's Unite for Kids 1991, Revised 1995, 1997 Table of Contents INTRODUCTION Part 1: Infant and Toddler Programs * Why Early Learning? * Values We Share * Services Guaranteed By Law * Eligibility for Infant and Toddler Program * Cost * Evaluation * Diagnosis * Individualized Family Service Plan * Review of the IFSP * Types of Services * Family Involvement * Professional Roles * Family Centered Services * Family Support * Parents' Rights * Settling Disagreements * Transition at Age * A Brief Guide to the Preschool Transition Process * Transition Checklist * Helpful Hints for Transition * Early Intervention and Special Education Services: How are they the same? How are they different? * Glossary of Terms Part II: Preschool Special Education * Eligibility for Preschool Special Education * Free, Appropriate Public Education (FAPE) * Least Restrictive Environment (LRE) * Making Friends * Family Involvement * Referral for Evaluation * Evaluation * Preschool Special Education * Child Study Team (CST) * Individualized Education Program (IEP) * Extended School Year * Related Services * Transportation * Program Models * Program Review * Qualified Personnel * Appropriate Facilities * Kindergarten and First Grade Transition * Parents' Rights PROGRAM SUMMARY PARENT EMPOWERMENT MORE INFORMATION Agencies in Montana (Which Serve Infants, Toddlers and Preschoolers) Child and Family Service Agencies State Agencies Advocacy INTRODUCTION Young children develop in many ways--physically, intellectually, socially, morally and spiritually. They have different potentials and develop at different rates. As they grow, some children experience delays in one or more areas. These children with delayed development benefit from therapies, support services, and special education which stimulate their development and help them to overcome or "work around" their developmental lags. You as a parent want what is best for your child. If your child has some developmental delays, you are probably interested in finding help. This booklet describes for you the publicly supported services in Montana that are available for children, birth through age six, who are experiencing developmental delays, disabling conditions, or who are "at risk" for developing them. Reading through this booklet will give you an idea of what choices are available to you and how you can make the best use of services for your child. With all of the services described, parents are under no obligation to enroll their children. The purpose of this booklet is to let you know what can be available for your child. The choice about whether to participate is up to you. This booklet is intended to assist you as you make decisions about your child's FIRST STEPS in the educational process. e Part I: Infant and Toddler Programs 1. Why Early Learning? When children are very young, we expect most of their needs to be met by their families. But when children have developmental problems, it is sometimes necessary to supplement what the family can do by seeking help from professionals like doctors, nurses, teachers, and therapists. Getting outside help and support early enough often has the effect of lessening a child's problems and helping him or her to develop more normally. Though it is sometimes difficult to think of infants and young children as "going to school," early training and therapy can make a tremendous difference. The preschool years are learning years for all young children. But for children with special needs, early learning takes on greater importance. Such skills as walking, talking, learning to feed and dress oneself, and getting along with others are often learned before the age of six. Some of these skills, such as language development, are best taught during the preschool years. The value of early learning activities has been recognized in Montana and there are a number of useful services available for infants, toddlers and preschool children with special needs. e 2. Values We Share Montana's early learning services for children with special developmental needs are based on the following set of beliefs and values: * As much as possible and appropriate, children belong in families. * Families need supports so they can nurture their children in the home. * Parents should be empowered to make their own decisions about how to meet their children's needs. * Infants, toddlers, and children with special developmental needs should have opportunities for inclusion in the typical activities of their families, neighborhoods, and communities. * Activities for children with special developmental needs should be appropriate to their ages. * Services for children should be individualized and should reflect high expectations for their growth and development. * Access to services is based on eligibility and family choice. * To the greatest degree possible, services to children should be provided through cooperation among parents, professionals and service agencies. e 3. Services Guaranteed by Law Both federal and state law guarantee services to eligible young children with special developmental needs. The federal law--Public Law 102-119-- authorizes a grant program to deliver early intervention services to children with disabilities from birth through two years. Montana has decided to participate in this program and has selected the Department of Public Health and Human Services, Developmental Disabilities Program, as the agency responsible for providing services to infants and toddlers (0-2) with developmental delays. P.L. 102-119 also extends the benefits of the federal special education law--Individuals with Disabilities Education Act (IDEA)--to children with disabilities between the ages of 3 and 6. In 1987, the Montana legislature passed HB 511 which parallels the federal law and requires all elementary school districts to establish and maintain special education programs for children with disabilities who are between the ages of three and six, inclusive. Special services are available for two age groups: 0-2 and 3-5. The Infant and Toddler Program is the responsibility of the Developmental Disabilities Program. The Preschool Special Education Program is administered by the Office of Public Instruction (OPI), Division of Special Education, and local school districts. These two systems--DDP and OPI--have somewhat different procedures and eligibility criteria. In this booklet, you will find information about the differences in the systems and about the ways the systems cooperate to serve children. e 4. Eligibility for the Infant and Toddler Program Children from birth up to age three with developmental delays are eligible for services in the Infant and Toddler Program. Montana has the following definition of developmental delay: Children from birth through age two inclusive, are eligible for early intervention and family support services under Part H of the Individuals with Disabilities Education Act (IDEA) if they: * 1. Have a diagnosed physical or mental condition that has a high probability of resulting in developmental delay (e.g. sensory impairments, inborn errors of metabolism, microcephaly, fetal alcohol syndrome, epilepsy, Down syndrome or other chromosomal abnormalities), even though the delay may not exist at the time of diagnosis; OR * Are experiencing developmental delays, as measured by appropriate diagnostic instruments and procedures in one or more of the following areas: * Cognitive delay; * Physical development, including vision and hearing; * Speech and language development; * Social and emotional development; * Self-help skills. The criteria to be used in determining a child's eligibility as a result of developmental delay includes; * A minimum of 50% delay in any one of the above developmental areas; or * A 25% delay in two or more of the above areas. Informed clinical opinion must be used in determining eligibility for services under Part H if there are no standardized measures, or the standardized measures and procedures available are not appropriate for a given age or developmental level. e 5. Cost If a child is eligible for the Infant and Toddler Program, the child receives services in the program without cost to the family. However, if the child is eligible for Supplemental Security Income (SSI) or other similar programs, or has private health insurance, funds from these programs or insurance benefits may be used first before Part H dollars can be used to pay for services in the Infant and Toddler Program. Part H can make interim payments if there would otherwise be an unacceptable delay in provision of services. Part H would then seek reimbursement from the originally responsible public or private source. e 6. Evaluation In order for a child to be eligible, he or she must have received a comprehensive assessment, including all of the relevant information available about the child's development. A child may not be evaluated unless the parents give their written permission. The assessment data is gathered by a team which includes the parents, a Family Support Specialist, medical practitioners, or others who have knowledge of the child's abilities and special needs. Parents are important contributors to the evaluation process. They have the right to help choose which evaluation tools will be used and to participate in the assessment process at the level which is comfortable for them. The results of the evaluation must be explained to parents in understandable terms. Parents have a right to receive copies of the evaluation results. e 7. Diagnosis Children with developmental delays often are "diagnosed" by a variety of professionals. They may receive a number of different labels: Down syndrome, pervasive developmental delay, multi-handicapped, medically fragile, low birth weight, sensory impaired, brain damaged, cerebral palsy, and many more. Some children receive no specific diagnosis. However, for the purposes of qualifying for the Infant and Toddler Program, the child does not need a label, only a functional diagnosis. In other words, it is important to know what the child can and cannot do. A functional diagnosis tells which developmental milestones--smiling, gurgling, sitting up, walking, talking and so forth--a child has mastered. The child's performance is measured against what is considered normal development for a particular age. Functional diagnosis is helpful for planning special programs for a child, but it may not shed any light on the causes for delays in development. e 8. Individualized Family Service Plan (IFSP) After a child has been found eligible for Part H services, the parents, a Family Support Specialist, and other professionals meet as a team to write an Individualized Family Service Plan (IFSP). The IFSP includes: * the child's present level of development * the family's strengths and needs relating to enhancing the child's development * the outcomes expected to be achieved, written in the family's own words * objectives describing how the outcomes will be accomplished * a listing of the family support services, including when, where, how often, and how each service will be paid for * projected dates for the starting of services and anticipated length of such services * name of the service coordinator * steps to be taken to support transition. e 9. Review of the IFSP If a parent is not satisfied with some aspect of the IFSP, the parent may sign off on services they want and revisit other issues and service needs as time goes on. Parents must approve of at least one outcome and set of objectives in order to begin services. IFSPs are dynamic documents which can be changed as families' needs change. The IFSP must be reviewed at least every six months. If a change in the IFSP is needed sooner than 6 months, the parent or anyone working with the child may call for a meeting to revise the IFSP. e 10. Types of Services The Infant and Toddler Program allows for a wide variety of possible services to meet the family's and the child's individual needs, including: * special instruction * parent and family education and counseling services * speech pathology and audiology services * occupational therapy services * physical therapy services * psychological services * service coordination and social work services * home visits * early identification, screening and assessment * health services necessary to benefit from early intervention services * nutrition services * vision services * assistive technology devices and services * transportation and related costs. e 11. Family Involvement Family involvement is basic to the Infant and Toddler Program. Parents are involved as primary decision-makers in every step, including: * identifying family needs and resources * identifying what role they wish to play in their child's evaluation * identifying who the members of the IFSP Team will be * determining the desired outcomes on the IFSP * identifying the role they wish to play in service coordination * determining how often and when home visits will take place * choosing which resource and service options to pursue, and * evaluating the progress of the IFSP and deciding on necessary changes. A child cannot be evaluated or served without the consent and involvement of parents. e 12. Professional Roles The individuals who work with children in the Part H Program must be qualified professionals. They may include any of the following: * family support specialists * special educators * speech and language pathologists * audiologists * occupational therapists * physical therapists * psychologists * social workers * nurses * nutritionists. A professional is considered qualified if he or she has met the standards set for licensure by the State of Montana. To deliver Part H service coordination in Montana, a professional must hold Family Support Specialist certification from the Developmental Disabilities Program. Habilitation aides or teaching assistants who do not have professional credentials may provide some services as long as they are properly supervised and trained by a licensed professional or a certified Family Support Specialist. e 13. Family Centered Services Infants and toddlers do most of their early learning in their families. Parents are their children's first and best teachers. However, when children have special learning and developmental needs, parents sometimes seek the assistance of professionals with experience in particular areas like speech and language, physical therapy, occupational therapy, health services, behavior management, or infant stimulation. Any or all of these special services may be needed by a child, but the child still remains part of a family. Whatever services are provided must be offered in the context of the family. e 14. Family Support Raising a child with developmental delays can be challenging for parents. They are faced with sorting through the advice of professionals and making decisions that they think are in the best interests of their child. They must deal with greater demands on their time, energy, marital relationship, and financial resources. They must consider the needs of all family members--the child with special needs, other children, close relatives. They must struggle, too, with their own emotions, disappointments, and concerns about the future. The Infant and Toddler Program is intended to support families as they meet all of these challenges. The program is not supposed to impose any particular philosophy or to be intrusive in family life. Instead, the Infant and Toddler Program attempts to meet the developmental needs of children and the needs for support which families themselves identify. e 15. Parents' Rights Parents of a child in the Infant and Toddler Program have the following rights: * timely resolution of complaints * confidentiality of personally identifiable information * opportunity to examine records * appointment of a surrogate parent if natural parents are not available to represent the child * prior notice for identification, evaluation, placement or provision of services * notice in the parent's native language * continuation of services to the child during a period when action is being taken on a complaint. e 16. Settling Disagreements If a parent disagrees with professionals on the IFSP Team, the parent can: * try to resolve the disagreement informally * ask for another meeting of the IFSP Team to discuss the issues again * utilize the agency's internal grievance procedures * appeal to the Administrator of the Developmental Disabilities Program * file a complaint with the Director of the Department of Public Health and Human Services * appeal through a district court or file a civil action. e 17. Transition at Age 3 At least 90 days before a child's third birthday, the IFSP Team must hold a meeting to plan the child's transition from the present program to the child's next step. Some children will need no further special services. Others will move into the Preschool Special Education Program provided by the local school district or special education cooperative. For children needing Preschool Special Education, a joint planning meeting (or meetings) must occur at least 90 days before the transition from Part H to preschool special education. Since eligibility criteria are not exactly the same between the 0-2 and the 3-5 programs, combined meetings between the programs can set up a process for evaluating the child and determining eligibility for preschool special education services. e 18. A Brief Guide to the Preschool Transition Process Preschool Transition focuses on the child's third birthday because: * the child is no longer eligible for the IDEA/Part H early intervention program; * the child may be eligible for the local IDEA/Part B Special Education program; and * the child may be eligible for other discretionary (not required by law) disability services. Child Find is the process of discovering children who may be eligible for services. Finding eligible children: * is the responsibility of both the early intervention agency and the public school; * requires cooperation across the family, the early intervention agency, and the public school to ensure smooth transitions between programs; and * ensures that the family may use the Transition Planning Meeting procedure described in Section 17 or other child find procedures to access the IDEA preschool special education program. Your Family Support Specialist will, with your permission: * convene a Transition Planning Meeting at least 90 days prior to the child's third birthday; * schedule the Transition Planning Meeting at a time and place that is mutually agreed upon by all those who will attend; and * assist your family through the transition process. The "core team" of the Transition Planning Meeting: * includes parents of the child, the family's Family Support Specialist, and a representative of the local public school or special education cooperative; * determines whether other parties should participate, as necessary; * discusses the similarities and differences between early intervention and special education programs under IDEA; * discusses the termination of Part H early intervention services; * advises the family about alternatives to special education if the child is not eligible to continue under IDEA services, or if the parent chooses not to refer for IDEA services; * if the family wishes, arranges for the family to meet special education personnel and visit possible preschool sites; * with written parental consent, shares records (assessments, evaluations, IFSPs, other useful information) with the public school preschool special education program; * helps the family to recognize the stress inherent in making the change from one program to another; * assists the child and the family to begin to develop a trusting, effective working relationship with the staff and administration of the preschool special education program. The purposes of the Transition Planning Meeting are: * to provide the family an opportunity to meet the public school staff and to begin to develop mutually supportive relationships; * to review the child's priority outcomes for the time from his/her third birthday through the beginning of the next school year; * to describe the steps and anticipated outcomes of the transition process; * to consider future needs and placements in relation to current services; * to discuss how to help prepare the child and family for changes in service delivery; * to help the family to decide if they wish to make a referral for evaluation for preschool special education services; and * to develop a plan for transition. Other things to remember about Transition Planning Meetings: * more than one meeting may be necessary; * the transition meeting should, above all, help the family to understand preschool procedures and services; * the transition plan which is developed at the transition meeting becomes part of the child's IFSP; and * the family may or may not decide to refer their child for evaluation for preschool special education after the transition planning meeting. Seven Sequential Steps in the Special Education Process (discussed in detail in Part II of this handbook on Preschool Special Education): * Child Find (includes transition meetings and pre-referral discussions) * Referral for comprehensive educational evaluation * Parental Notice and Permission for Evaluation * Completion of Evaluation and Assessment * Child Study Team Meeting * IEP Meeting, including Parental Notice and Consent for Placement * IEP Implementation and Annual Review e 19. Transition Checklist ____ 1. The transition meeting has been held and the transition plan is part of our child's current IFSP. ____ 2. Our child has been referred to our local school district. ____ 3. The following records and information have been provided to our local school district: * Birth certificate * Current picture of my child * Shot (immunization ) record * Social Security number * Medicaid number (if your child has one) * Emergency contacts * Child records from your early intervention agency including IFSPs identifying child-focused services provided * Other preschool or child care program records * Follow Me Program records or other records from Special Health Services/Follow Me Program * Hospital, clinic, or other medical records. ____ 4. Screenings and evaluations have been completed. ____ 5. Eligibility for special education has been determined. ____ 6. If our child is not eligible for special education services from our local school district, other options have been discussed. ____ 7. We have visited our local school districts' preschool. ____ 8. Our child's IEP has been written. ____ 9. Our child's school placement has been determined. ____ 10. Transportation needs have been arranged. ____ 11. We have met and talked with our child's new teacher(s). ____ 12. Our child has met with his or her new teacher(s). e 20. Helpful Hints for Transition * Start early The infant and toddler years go by quickly. Begin to plan early for your child's next step at age three. * Be part of the transition planning team Play an active role in the decisions made about your child's transition. * Know and understand your child's educational rights When you sign the form to have your child evaluated, your school district will provide you with a copy of "Parents Rights in the Special Education Process." Read the booklet. If you do not understand these rights, ask your Family Support Specialist, a parent from PLUK (1-800-222-7585), or the local school staff to help. * Know and understand the responsibilities of the school district Preschool special education is quite different from the Part H program. It is important for you to understand the differences. * Think about your child's strengths and abilities An important role for you at IEP meetings is to talk about your child's strengths. Sharing the things your child likes and dislikes with the team can help the school staff to understand and serve your child better. * Remember that you are going through a transition, too The Part H program is very nurturing for families as well as for children. Preschool special education is focused on a child's educational needs and not on family needs. You will be saying good-bye to professionals who have been significant in your life and meeting a new group of professionals. Give yourself time to adjust to the change. 21. Early Intervention and Preschool Special Education Services: How are they the same? How are they different? Early intervention and preschool special education services are the same in some ways and different in others. The chart below is a brief comparison of the two programs. If you have further questions, please ask your Family Support Specialist and/or your local school district preschool staff for help. Montana's Part H Early Intervention Programs Montana's Part B Preschool Special Education Programs Age served: Children, birth to 3, who have a condition which usually results in developmental delays, or who already show serious delays in one or more developmental areas. Children, 3 to 5, who meet the definition of "child with a disability." (See definition in Glossary, Section 22) Focus: Early Intervention focuses on helping to meet the needs of both the child and the family. Preschool special education focuses on meeting the educational needs of the child. Type of Plan Used: Early Intervention uses an Individualized Family Service Plan (IFSP). Your local school district uses an Individualized Education Program (IEP). Service Delivery Model: Families are not required to take part in early intervention programs. Their involvement is voluntary. Coordination of services is provided through local child and family service providers. Planning for services happens at the IFSP meeting. The parents are considered the lead member of the IFSP team. The IFSP document belongs to the family, and details the child and family's plan for receiving early education and related services. At the IFSP meeting, the parent, the Family Support Specialist, and others plan what services are needed, who will provide the services, where the services will happen, how long the services will go on, and how often the child/family will get services. Services are based on the child's needs and the needs of the family. A variety of local programs and professionals may be used to provide needed services. Some service options may depend upon geographic location. Services provided through local agencies might include home visits, parent and child education programs, private therapies, and other identified service needs. In early intervention, the main contact for the family is their Family Support Specialist. Children usually transition out of early intervention services at age 3. Eligible children transition into services provided through their local school district. Other service options, such as continuing services with their child and family agency, or looking for a community preschool program, are discussed with the family. Some children may be served by both a child and family service agency and their local school district. Children are not required to take part in preschool special education programs. Their involvement is voluntary. The needed educational and related services for the child are provided through the local school district. Planning for services happens at the IEP meeting. The parents are considered a full member of the IEP team. The IEP document details the child's plan for special education and related services. When it reviews the comprehensive educational evaluation (see Glossary), the Child Study Team identifies the child's educational needs. At the IEP meeting, goals and objectives are written to address these identified needs and are based on the child's level of performance. The IEP team also sets the date of initiation for the special education and related services. The team decides how the goals can be met and what services are necessary. Then the team decides where the child will receive services (placement). The team also decides how often the child will get the services (frequency) and how long the services will go on (duration). Usually, the local school district will have preschool service options available for the child. These may include preschool special education in the classroom and provision of related services like physical and speech therapy which support the specialized instruction. The services may be provided at the local school or at other community-based programs. In local schools, the main contact for the parents is usually their child's preschool special education teacher. Continued special education services are available for children as they grow older. The IEP team will meet at least annually to review and, if appropriate, revise the IEP. If the IEP team decides that the child has met all of the goals and objectives in the IEP and no longer needs special education, a Child Study Team will meet to determine whether the student is a child with disabilities who needs special education. Near the child's sixth birthday, the public school will provide notice that it intends to conduct an evaluation. Then the Child Study Team will evaluate the child, and determine whether the child meets the criteria defining a disability under the IDEA. If the child meets criteria for one of the special education categories, the child will receive a specific label like cognitive delay, learning disabled or multiply disabled. e 22. Glossary of Terms Used in Early Intervention and Special Education Assessment means the gathering of information by qualified personnel on a child's development, and on the needs and priorities of the family. This information about the child and family is used in planning the Individual Family Service Plan (early intervention). At Risk means that a child has conditions which make it likely that he/she may have some developmental delays. A child identified as "at risk" is not eligible for early intervention services under Part H of IDEA or for special education under Part B of IDEA. The child may be eligible for discretionary (not required by law) Family Education and Support (FES) Services through a local child and family services agency (early intervention). Child with a Disability means a child who is 3, 4, or 5 years of age who has a severe delay in development (defined below) or who meets the criteria defining any of the disability categories described below, and who, because of this severe delay or disability, needs special education and related services (special education). Severe delay in development means that a Child Study Team has found that the child functions at a developmental level 2 or more standard deviations below what is normal in any one area of development, or 1.5 standard deviations below what is normal in two or more areas of development. The areas of development are cognitive, physical, communication, social/emotional, or adaptive (self-help). The Child Study Team also must determine that the delay is not due exclusively to environment, economic disadvantage, or cultural factors. Your local school, your Family Support Specialist, or a Parent Support Consultant from PLUK can help you to understand the evaluation process that finds out if your child has a severe delay. Special Education disability categories under Montana Law: The IDEA requires Child Study Teams to classify all students with disabilities, six years of age and older, into one or more of the following disability categories: autism cognitive delay deaf-blindness deafness emotional disturbance hearing impairment orthopedic impairment multiple disabilities other health impairment specific learning disability speech impairment traumatic brain injury visual impairment Cognitive refers to the brain processes used for thinking, reasoning, understanding and judging (both early intervention and special education). Comprehensive Educational Evaluation means the tests and observations done by public school staff to find out if the child has a disability and requires special education and related services. The school district's Child Study Team is required to do this evaluation. The Child Study Team meeting discusses the results of the comprehensive educational evaluation. A parent may choose to share any evaluation and assessment information done by the child and family agency, or by other qualified persons (special education). Developmental refers to the steps or stages of mental, physical, and social growth in children under age eighteen (both early intervention and special education). Developmentally Delayed means having a diagnosed physical or mental condition that has a high probability of resulting in developmental delay, even though the delay may not exist at the time of diagnosis or experiencing developmental delays as measured by appropriate diagnostic instruments in one or more of the following areas: cognitive development, physical development including vision and hearing, communication development, social or emotional development, or adaptive development (early intervention). Due Process (in early intervention) refers to a process for resolving a dispute between the family and the child and family service agency related to the delivery of early intervention services. Due Process (in special education) refers to a process for resolving a dispute between the family and the public school related to the identification, evaluation, or placement of a child with disabilities. Evaluation is the process used to find out if a child qualifies or continues to qualify for early intervention or special education services. The process includes finding out the status of the child in several developmental areas (both early intervention and special education). Extended School Year refers to the delivery of special education and related services during the summer vacation when the child needs those services in order to prevent significant loss of previously learned skills. The IEP team must consider the need for Extended School Year at each meeting and must describe those services specifically with goals and objectives. Not all special education students, nor all special education services in the IEP, require an extended school year. Extended school year services must be individually crafted. (A more complete description of ESY services and criteria can be found in "Extended School Year Programs", a booklet available from the Office of Public Instruction by calling 406-444-5661.) (special education) Individuals with Disabilities Education Act (IDEA) is the federal law which provides the legal authority for early intervention and special educational services for children birth to age 21. Individualized Education Program (IEP) means the written document which defines the special education and related services which make up a free, appropriate public education for a child with disabilities. The program is designed to meet the individual special education and related services needs of an eligible child (special education). Individual Family Service Plan (IFSP) means the written document which defines the early intervention services provided to the child and family. The program is designed to meet the needs of the child and the family, and is based on family-identified priorities (early intervention). Intervention means all of the efforts made on behalf of a child with a disability and that child's family (early intervention). Least Restrictive Environment (LRE) means the placement which is as close as possible to the regular education environment (special education). Natural Environment means a place where typical infants and toddlers without disabilities are usually found, like a family home or a pediatrician's office. Early intervention services are provided in natural environments whenever possible (early intervention). Part B is the part of the Individuals with Disabilities Education Act (IDEA) which outlines services for children ages 3-21 (special education). Part H is the part of the Individuals with Disabilities Education Act (IDEA) which outlines services for children birth to age 3 (early intervention). Preschool Special Education means an educational program that is designed to meet the unique developmental needs of an individual child with a disability who is three, four, or five years of age. Preschool special education is a child-focused educational effort (special education). Referral for evaluation means that a parent wishes the school to conduct a comprehensive educational evaluation to find out whether their child has a disability which requires special education. A referral ends up in a Child Study Team (CST) meeting in which the parents and the school staff discuss the findings of the evaluation (special education). Related Services are supportive services required to help a child with a disability benefit from his/her individual education program (IEP). Related services for a child are discussed and decided upon by the IEP team at the IEP meeting. Some examples of related services under Part B of IDEA include audiology, occupational therapy, physical therapy, speech and language therapy, counseling services, psychological services, school nurse services, school social work services, transportation, and parent training. Related services support the student's special education and cannot occur without special education (special education). Screening is the process of quickly looking at a child's development to find out if there are any areas of concern. Screening is used to recommend children for more in-depth evaluation and assessment (early intervention and special education). Service delivery is the manner or setting in which early intervention services will be provided to the child and/or family (early intervention). Therapy is a treatment for certain physical or psychological conditions. The most common therapies provided through early intervention and special education are occupational therapy, physical therapy, and speech and language therapy (early intervention and special education). Transition is the movement from one place or program to another. Young children with disabilities transition at age three from early intervention to preschool special education services or to other community settings and services (early intervention and special education). e Part II: Preschool Special Education 1. Eligibility for Preschool Special Education A child is eligible for preschool special education if he or she meets the criteria for one of the disabling conditions recognized by the Individuals with Disabilities Education Act (IDEA) and Montana Code. The child must be: speech/language impaired, other health impaired, hearing impaired (includes deafness), visually impaired (includes blindness), orthopedically impaired, cognitively delayed, multiply-disabled, deaf/blind, seriously emotionally disturbed, learning disabled, autistic, or traumatic brain injured. A child who is 5 years old or younger may be identified as a child with disabilities without the disabilities being specified. If a child is deemed eligible for preschool special education, the child should begin the program on the day that he or she turns three. An eligible child whose third birthday falls during the summer vacation begins services in the fall unless the child is eligible for Extended School Year (ESY) services. e 2. Free, Appropriate Public Education (FAPE) When a child enters a preschool special education program, he or she is guaranteed all of the protections and benefits of the federal and state special education laws. The central benefit under these laws is a free, appropriate public education. Every child who qualifies for special education has the right to a public education. It does not matter how severe the child's disabilities may be or how much special education the child requires. Every qualifying child must receive an appropriate educational program, and the services must be provided without cost to the parents. e 3. Least Restrictive Environment (LRE) Every child in special education must be placed in a program which is located in the least restrictive environment. The least restrictive environment means the placement which is as close as possible to the regular education program. Special education law favors placing children with disabilities in regular classrooms with whatever supplemental aids they need to be successful. If a child is not going to be placed in regular education, the school district must justify the removal from regular education as necessary to meet the child's needs. The least restrictive environment (LRE) at the preschool level has been interpreted somewhat differently from LRE at the elementary school level. Since few public schools offer preschool programs for children aged 3 and 4, there is no "regular" classroom environment in which preschoolers with special needs can be placed with children who are the same age. Preschool children may, however, be integrated into kindergarten classes with 5 and 6 year-olds. Or they may be served in a community-based preschool classroom, a Head Start class, a preschool special education classroom with children who are the same age, or in a homebased program in which the special education teacher provides services in the child's home. School districts are not responsible for establishing preschool programs for nondisabled children, nor do districts have to pay for private preschool placements for children with special needs unless such a placement is necessary to implement the child's special education program. e 4. Making Friends All children need a chance to make friends with other children their age. Special education law encourages school districts to give children with disabilities the chance to associate with other children, both disabled and nondisabled, so that they can build a circle of friends and acquaintances. All children in special education--no matter where they receive their program--have the right to spend at least part of the school day with children who do not have disabilities. The least restrictive environment for preschool children may be achieved in any of the following ways: * Locating a preschool special education program in a regular elementary school * Linking a preschool special education program to preschool programs operated by other public or private agencies (e.g. Head Start) * Combining children who have disabilities with children who do not have disabilities in a preschool special education program ("reverse mainstreaming"). A child in a preschool special education program may be placed in a private preschool if such a placement is necessary to implement the child's Individualized Education Program (IEP). The school district would be responsible for the costs of the private placement for the portion of time that the child was receiving special education. e 5. Family Involvement Parents are important decision-makers in the special education of young children. School districts must inform parents about the options available and the procedures used in special education. Representatives of your school district should discuss with you: * The nature of your child's disability and its implications for education * Methods of coordinating your child's services * The school district's special education program and how it works. e 6. Referral for Evaluation You as a parent can refer your child for a special education evaluation. Professionals who work with your child like your family physician or a therapist may make a referral. A child may also be referred because of concerns raised by a Preschool Screening. To make a referral: * Contact your local school district * Indicate the reasons for suspecting that your child has a disability * Fill out the district's referral form describing the child's learning problems or developmental delays * Give your consent in writing so that your child can be tested for special education. e 7. Evaluation A comprehensive educational evaluation must look at the child from several viewpoints. It must also be nonbiased and nondiscriminatory. If your child speaks a language other than English, your child must be tested in the language which he or she uses and understands. The comprehensive evaluation cannot be limited to one test. It may include (but is not limited to): * An individual psychological examination * Vision and hearing examinations * A medical history * Standardized developmental evaluation * Observations of social behavior * Assessment of language development * Observation in several environments * Information from family members and others who know the child well * Information from teachers, doctors, therapists, and others who have worked with the child. You must consent in writing to the evaluation, and you have the right to be fully informed of the results. At the Child Study Team meeting you will meet with public school personnel to discuss the results of the evaluation. e 8. Preschool Special Education When children are three, four, and five years old, it is sometimes hard to imagine them attending "school" as older children do. Preschool special education is a program designed to meet the unique developmental needs of a particular child. The program may focus on self help skills, motor development, language skills, pre-academic learning, social skills or any combination of these. Preschool special education is education. It is not designed to meet a child's medical needs, nor does it provide the child care services typically found in daycare. e 9. Child Study Team (CST) The Child Study Team (CST) includes parents, a school administrator, a special education teacher, a regular education teacher (if the child is in kindergarten), and other individuals who are qualified to report on the results of a child's evaluation. If the child is enrolled or going to be enrolled in Head Start or a private preschool, representatives of those programs also become part of the Child Study Team. The Child Study Team has two purposes: * To decide whether or not the information from the evaluation indicates that the child has a disability * To determine whether or not the child needs special education. e 10. Individualized Education Program (IEP) The Individualized Education Program (IEP) is similar to the Individualized Family Service Plan (IFSP) used in the 0-2 program. The IEP contains goals and objectives for the child's special education program. It also lists the child's related services and identifies in what type of placement--home-based, center-based, private preschool, Head Start--the child will receive his or her special education program. The IEP is written by a team which includes the parents, a special education teacher, a school administrator and others, if necessary. The IEP cannot be implemented until parents have approved it. Once an IEP has been written and signed, it must be put into practice immediately. e 11. Extended School Year Normally special education services are provided during the regular school year, but some children require more schooling than that. Extended School Year (ESY) services may be written into the IEP and provided to a child during the summer months. ESY services are offered to prevent significant loss of previously learned skills. For more information on ESY, contact the Office of Public Instruction (406-444-5661) and ask for the booklet "Extended School Year Programs." e 12. Related Services Children in special education are entitled to a wide variety of services if they need those services in order to benefit from their education. These related services may include (but are not limited to): * Physical therapy * Occupational therapy * Speech therapy * Audiology * School nursing * Counseling * Transportation * Recreation * Parent training * Psychological services * Recreation therapy * Social work * Assistive technology * Rehabilitation counseling. The IEP should indicate the related services the child needs, how much of the service is required, and how often the service will be provided. e 13. Transportation If transportation is a related service that a child needs, the school district must provide the transportation, contract with another agency to do so, or contract with the parents to bring their child to school. If a parent has been offered a transportation contract but does not want to transport the child, the school district is still responsible for providing transportation. Parents cannot be forced to provide transportation if they are unwilling or unable to do so. e 14. Program Models Special education can be provided to preschool children in a number of ways. The IEP team will identify the placement appropriate for the child and may consider among placements such as: * Special education for the child may be provided in the child's home by an itinerant special education teacher. * Center-based programs involve bringing children to a central location for a preschool special education class. The program usually lasts for two hours per day for three, four, or five days per week. According to need, some children may require more or less time in preschool special education than two hours per day. * Five year-old children with disabilities may participate in a regular kindergarten program with supplementary special education. Some children may be placed both in kindergarten and in a preschool special education class. * Reverse mainstreaming involves nondisabled children coming into a special education classroom and participating in activities with identified special education students. * Children with a particular special education need like language development may be placed in a special education program which focuses specifically on that need. * School districts may contract with a local private preschool to provide a program for a specific child. A special educator must supervise the child's special education program and provide the special education instruction in the child's IEP. Related services that the child needs may be provided at the private preschool or at the public school. Parents do not have to pay the costs of the special education and related services or the portion of the private preschool cost necessary to provide special education. * A school district may collaborate with Head Start to provide a special education program. * When the needs of the child require it, two or more of the options above may be combined into a dual placement. e 15. Program Review The Individualized Education Program (IEP) should be reviewed periodically because preschool children grow and change very rapidly. Parents can ask for a review at any time. The IEP must be reviewed and rewritten at least annually. The annual review should consider transition into the primary grades and into less restrictive environments. A comprehensive reevaluation of the child's strengths and weaknesses must be conducted at least every three years. Parents, however, can ask for a reevaluation at any time that it seems necessary and appropriate. e 16. Qualified Personnel Special education and related services for preschool children must be provided by qualified personnel. These professionals must have the training to hold licenses in their specific fields like speech/language pathology, special education, physical or occupational therapy. Unless private preschool or Head Start teachers have these licenses, they may not provide special education and related services. Certified teachers with child development credentials and certified elementary teachers may assist with special education but may not provide special education unless they are also endorsed as special education teachers. e 17. Appropriate Facilities Classes for preschool children with special needs must be provided in classrooms comparable to regular education classrooms. These classrooms must meet at least minimum standards for heat, light and ventilation. Classrooms must either have toilet facilities or appropriate access to toilet facilities. Classrooms must be physically accessible to the children who are in the program and should be equipped with unbreakable furniture and toys, covered electrical outlets, tap water at safe temperatures and appropriate exits in the event of an emergency. e 18. Kindergarten and First Grade Transition As a child's sixth birthday comes closer a number of important decisions have to be made. First of all, if the child has been identified as a "child with disabilities," that generic label must be changed to one of the disabling conditions found in Montana's special education law for school-aged children. This change in label can be traumatic for parents. Parents should insist that the child be thoroughly and properly evaluated before any new label is applied. A second important decision concerns placement, specifically how the IEP team will determine the appropriate placement for the student entering kindergarten or first grade in the public school. The preference in special education is for placement in the regular classroom if the child's needs can be met in that setting. When considering a regular classroom placement, the IEP team should consider what barriers there may be to the child's success and how those barriers could be eliminated. e 19. Parents' Rights Parents of children in special education are intended to participate fully with professionals in designing their child's educational program. To guarantee that parents have an opportunity to participate, special education law provides parents with the following rights: * Notice. You have the right to receive written notice before the school evaluates your child individually, considers special education for your child, or changes your child's placement. You also have the right to receive notice before the school district refuses your request for an evaluation or a change in placement. * Records. You have the right to inspect and review all of your child's educational records. * Consent. You must give written consent before the school district can evaluate your child or place your child in a special education program. * Evaluations. It is important to understand the following about evaluations: * You may refuse to permit an evaluation; * If your child is evaluated and you think the evaluation is not adequate, you have the right to get an INDEPENDENT EVALUATION; * The school district must reevaluate your child at least every three years; * All tests must be given in the language the child knows best; * You have the right to be fully informed of the results of the evaluation. * Due Process. You have the right to an impartial due process hearing if you disagree with the school district on a special education matter. * Complaints. You have the right to file a complaint with the Office of Public Instruction if the school district does not comply with special education law. e PROGRAM SUMMARY Infant and Toddler Program Preschool Special Education Agency: Developmental Disabilities Program/DPHHS Local School District Ages Served: 0-2 3-6 Eligibility: developmentally delayed child with disabilities or// * cognitively impaired * learning disabled * emotionally disturbed * multiply-disabled * other health impaired * orthopedically impaired * hearing impaired * deaf/blind * visually impaired * autistic * traumatic brain injured First Contact: * STEP: 800-820-4180 * ECI: 406-247-3817 * Family Outreach: 406-443-7370 * CDC: 800-914-4779 * Quality Life Concepts: 800-761-2680 * DEAP: 800-224-6034 * Hi-Line Home Programs: 800-659-3673 local school district Cost: none none Services: * family education and training * respite * service coordination * family support * related services special education & related services Program Plan: IFSP IEP e PARENT EMPOWERMENT As your child moves through the preschool special education process, he or she will be learning many new skills. You as parents will also be acquiring knowledge about yourselves, about your child, and about the services and opportunities available to your child. The more information you have, the more power and control you will have over your child's educational future. You can become empowered as a parent of a child with special needs by doing the following: * Contacting national, state and local disability groups for more information about your child's disability; * Reading materials available from the TRIC/PLUK Library at Parents, Let's Unite for Kids (800-222-7585); * Asking questions of the professionals who work with your child; * Keeping careful records of your child's medical and educational history; * Participating in parent training workshops; * Joining a parent organization and gaining emotional and social support. e MORE INFORMATION The information in this booklet is really just an outline of all that you need to know about early intervention and preschool special education services. You will want to know much more. The easiest way to get information in Montana is to call Parents, Let's Unite for Kids (PLUK) toll free at 1-800-222-7585, Monday through Friday, 9:00 a.m.-5:00 p.m. PLUK is a statewide organization of parents of children with special needs. The person who answers your call will be an experienced parent who is knowledgeable about the service system in Montana and can help you get plugged into the services you need. PLUK also offers parent training workshops on stress management, special education law, and advocacy techniques. The TRIC/PLUK Library mails out materials on disabilities, equipment, assistive devices, and many other topics. In addition, PLUK publishes a monthly newsletter which focuses on issues of interest to parents. Most importantly, PLUK has a network of parents and parent support groups throughout Montana. A call to PLUK can link you up with a parent in your area. All of PLUK's services are free to parents of children with disabilities and chronic illnesses. e Agencies in Montana (Which Serve Infants, Toddlers and Preschoolers) Child and Family Services Agencies Comprehensive Developmental Center (CDC) T-214 Fort Missoula Missoula MT 59801; 406-549-6413; 406-542-0143 (fax); 800-914-4779 CDC Satellite Office 945 4th Ave E Kalispell MT 59901; 406-755-2425; 406-755-2426 (fax) Developmental Educational Assistance Program (DEAP) 2200 Box Elder St Box 986 Miles City MT 59301; 406-232-6034; 406-232-7018 (fax); 800-224-6034 (in MT) DEAP Satellite Office PO Box 750 Colstrip MT 59323; 406-748-4629; 406-748-3607 (fax-call first) DEAP Satellite Office 218 W Bell Glendive MT 59330; 406-365-4909; 800-578-4909 (in MT); 406-365-6927 (fax) DEAP Satellite Office PO Box 972 Lame Deer MT 59043; 406-477-8002 Family Outreach 1212 Helena Ave Helena MT 59601; 406-443-7370; 406-449-6062 (fax) Family Outreach Satellite Office 19 N 10th Bozeman MT 59715; 406-587-2477; 406-587-9526 (fax) Family Outreach Satellite Office 641 Sampson Butte MT 59701; 406-494-1242; 406-494-1979 (fax) Quality Life Concepts, Inc. PO Box 2506 600 6th St NW Great Falls MT 59403; 406-452-9531; 406-453-5930 (fax); 800-761-2680 (in MT) Quality Life Concepts Satellite Office PO Box 527 Havre MT 59501; 406-265-2620; 406-265-2670 (fax) Quality Life Concepts Satellite Office PO Box 1122 Cut Bank MT 59427; 406-873-4131; 406-873-4132 (fax) Hi-Line Home Programs, Inc. 90 Hwy 2 East Glasgow MT 59230; 406-228-9431; 406-228-2984 (fax); 800-659-3673 (in MT) Hi-Line Homes Satellite Office PO Box 909 Miles City MT 59301; 406-232-4925 Hi-Line Homes Satellite Office PO Box 349 Sidney MT 59270; 406-482-6061; 800-628-8618 Hi-Line Homes Satellite Office PO Box 26 Plentywood MT 59254; 406-765-1282; 800-322-4175 Early Childhood Intervention (ECI) Billings Public Schools 415 N 30th St Billings MT 59101; 406-247-3817; 406-247-3800; 406-247-3773 (fax) Support and Techniques for Empowering People (STEP) 1501 14th St W Suite 210 Billings MT 59102; 406-248-2055; 406-248-1493 (fax); 800-820-4180 (in MT, CO, ID,ND & SD) STEP Satellite Office 511 Montana Building Lewistown MT 59457; 406-538-9759; 406-538-9759 (fax) STEP Satellite Office PO Box 1638 Red Lodge MT 59068; 406-446-3436; 406-446-3436 (fax) State Agencies Office of Public Instruction (OPI) Division of Special Education PO Box 202501 Helena MT 59620; 406-444-5661 Developmental Disabilities Program/DPHHS DPHHS Building 111 Sanders PO Box 4210 Helena MT 59604; 406-444-2995; 406-444-0230 (fax) Advocacy Parents, Let's Unite for Kids (PLUK) 516 N 32nd St Billings MT 59101; 406-255-0540; 406-255-0523 (fax); 800-222-7585 (in MT) e-mail: plukmt@wtp.net Copyright (c) 1998 Parents, Let's Unite for Kids, all rights reserved. plukmt@wtp.net ---------- End of Document