
                               PREMATURITY
THE PREMATURE BABY BOOK
Harrison, Helen, St. Martin's Press, New York, NY, 1983.
     Written by IVH Parents member Helen Harrison, this comprehensive
guide to prematurity is the best book of its kind.  It is written for
parents and individual stories of premature births and their outcomes are
interwoven in the text.
     Subjects include: coping with a birth crisis; the problems of
prematurity (including an excellent section on intraventricular
hemorrhage and hydrocephalus); history of the premature nursery; nursery
parenting; feeding your baby; the first year; will my baby be normal?;
the death of a baby and deciding to have another baby.  Useful appendices
and glossary are included.  The illustrations and photographs are
excellent.

YOUR PREMATURE BABY
Henig, Robin, and Fletcher, Anne, MD, Rawson Associates, New York, NY
1983.
     Another fine guide book on premature infants, handicaps, and medical
ethics.

PREMATURE BABIES
Nance, Sherrie, Arbor House, New York, NY, 1982.
     Written by the immediate past president of Parent Care (formerly
Parents of Premature and High Risk Infants International), this book
discusses feelings and medical facts on prematurity.

PREMIE PARENTS' HANDBOOK
Lieberman, Adrienne, and Sheagren, Thomas, MD, E.P. Dutton, New York, NY
1984.
     Mostly geared to parents of non-handicapped premature babies, this
simply and clearly written book briefly discusses intraventricular
hemorrhage, shunts, seizures, and cerebral palsy.  Some subjects covered
are: why was the baby born too soon; labor, delivery and your hospital
stay; parents in the NICU; baby who is sick; how families cope; bringing
your baby home; development in the first year, if your baby has ongoing
problems; and your next pregnancy.

THE PREMATURE LABOR HANDBOOK
Robertson, Patricia MD, Berlin, Peggy, PhD, Doubleday & Co., Garden City,
NY, 1986.
     If you are at-risk for premature delivery, and wish to have another
child, this well-written book may prove to be helpful.  Subjects
discussed include: premature labor and weakened or incompetent cervix;
special problems of DES daughters; relationships with family members
during high risk pregnancy; nutrition and exercise in pregnancy
complicated by incompetent cervix; tapping inner resources through
visualization (positive self-talk and "contacting the inner physician).
A useful glossary of medical procedures is provided.

PREMATURE BABIES:  A DIFFERENT BEGINNING
Sammons, William, MD, and Lewis, Jennifer, MD, Mosby Company, St.  Louis,
MO 1985.
     This well-written book is illustrated with graphs, photographs, and
CAT scan reproductions.  Interspersed with the text are quotes from
parents discussing their feelings.  Subjects covered include: the history
of premature infant care; premature labor and delivery; grieving and
bereavement; bonding and attachment; neonatal intensive care unit; staff
of the NICU; development of the brain and central nervous system; effects
of NICU, staff, and parents on development discharge; twins; having
another child; continuing medical care; paying the bills; support groups;
medical problems of premature infants; and medical procedures commonly
used in NICU.

D.E.S.:  THE BITTER PILL
Meyers, Robert, Seaview/Putnam, New York, 1983.
     This book begins with the synthesis of DES in 1938 by Sir Edward
Charles Dodds, a British biochemist.  The drug's history and many uses is
explored at length.  Subjects discussed include:  conflicting
reports showing that DES prevented miscarriages - or didn't; goverment
approval and marketing; problems of adult DES daughters (such as vaginal
cancer, miscarriages, infertility, and premature births); problems of DES
sons; use of DES as a "morning-after" pill; DES use in livestock and in
our food; the DES comsumers' movement, and DES and the law.

DES: THE COMPLETE STORY
Orenberg, Cynthia Laitman, St.  Martin's Press, New York, 1981.
     The author is a DES mother.  She well knows the anger and helpless
guilt of a woman who followed her doctor's orders trying to help her
baby, and in doing so, harmed her baby.  Ms. Orenberg discusses DES
history, how it affects the reproductive system of the developing fetus,
what effects DES has on daughters, sons, and mothers, the role of drug
companies, the goverment and physicians, legal battles, and practical
information for the DES-exposed.

                           COMMUNITY RESOURCES

THE SELF-HELP SOURCEBOOK:  Finding and Forming Mutual Aid Self-Help
Groups
editors Madara, Edward and Meese, Abigail, New Jersey Self-Help
Clearinghouse, St. Clares-Riverside Medical Center, Denville, NJ 07834.
     This useful book is a listing of self-help groups in the United
States.  Catagories include health and disabilites (IVH Parents is here),
addictions and dependencies, bereavement and death, mental health,
parenting, sexuality, crime, divorce, and many others.  It includes how-
to ideas on forming your own self-help group.

A READER'S GUIDE FOR PARENTS OF CHILDREN WITH MENTAL, PHYSICAL, OR
EMOTIONAL DISABILITIES
Moore, Cory; Morton, Kathryn; and Southard, Anne, Maryland State Planning
Council on Developmental Disabilities Baltimore, MD  1983.
     A community resources guide for parents of children with
disabilities.  Includes recommended books for children about handicapped
children, journals, directories, and indexes.

NATIONAL DIRECTORY OF CHILDREN AND YOUTH SERVICES, 1988-89
available from the National Directory of Children and Youth Services, PO
Box 1837, Longmont, Colorado, 80502, $53.
     This 700-page directory has information and descriptions on every
state's health, welfare, and juvenile justice systems along with contact
persons. It lists 1500 state and community groups that provide special
services directly to the individual.  A "Who's Who in Federal Children
and Youth Services," is provided, as are resource centers and
clearinghouses which serve children.  All the entries include names,
addresses and telephone numbers.

                          PRACTICAL INFORMATION

TAKING ON THE WORLD:  EMPOWERING STRATEGIES FOR PARENTS OF CHILDREN WITH
DISABILITIES
Mitchell, Joyce Slayton, Harcourt Brace Jovanovich, New York, 1982.
     This is an informative, well-written guide to advocacy for parents
of handicapped children.  It offers strategies for dealing with the
"worlds" of the family, schools, churches, work, government and medicine.
Some highlights include "broken heart exercises" (practical advice on how
to deal with constant sorrow), step-by-step guides for forming parent
groups, writing letters and keeping records, fighting for your child's
rights, and dealing successfully with the medical bureaucracy.

HOME CARE FOR THE CHRONICALLY ILL OR DISABLED CHILD
Monica Loose Jones, Harper and Row, New York, NY 1985.
     Subtitled "A Manual and Sourcebook for Parents and Professionals,
this book is a comprehensive guide to the practical and emotional aspects
of living with a child with a disability or illness.  Subjects include
respiratory therapy; how to give medicines; orthopedic needs; vision,
hearing and communication problems; personal hygiene; play; and
recreation and travel.
     This well-written, clearly illustrated book was written by the
mother of a child who died of a dehabilitating condition.

THE WHEELCHAIR CHILD
Russell, Philippa, Prentice-Hall, Englewood Cliffs, NJ 1985.
     An excellent guide to making life easier and happier for non-walking
children.  Well-illustrated and crisply written, some topics covered are:
some causes of handicaps, help from hospital and community services,
growing up with a disability, mobility aids other than wheelchairs,
choosing and using a wheelchair, leisure, play, and vacation.

RAISING THE HANDICAPPED CHILD
Pearlman, Laura, and Scott, Kathleen, Prentice-Hall, Englewood Cliffs,
NJ, 1981.
     Written by a speech pathologist and a physical therapist, this well-
written and well-organized book defines terms, explains legal rights and
clarifies medical conditions.  There is a good section on facts versus
myths.  Other subjects include: coping; siblings, relatives, and friends;
identifying medical problems; education and PL 94-142; discipline;
socialization; alternative living arrangements; financial consideration;
and looking at the future.

ONE MIRACLE AT A TIME:  HOW TO GET HELP FOR YOUR DISABLED CHILD
Dickman, Irving, Simon and Schuster, New York, 1985, $17.95 hardcover.
     This poorly organized but interesting book was written by the father
of a handicapped boy.  He uses his experience, and the experiences of
other parents to outline techniques of coping with the difficulties of
raising handicapped children.  Subjects include: working with
professionals, where to find financial aid, education, genetic counseling
and advocacy techniques.

AN EDUCATION HANDBOOK FOR PARENTS OF HANDICAPPED CHILDREN
Mopsik, Stanley, and Agard, Judith, Abt Associates, Cambridge, MA 1980.
     A resource book designed to help parents ensure the educational
rights of their handicapped children. Subjects include: the parent-school
partnership, the evaluation process, Individualized Education Program
(IEP), placement procedures and alternatives, related services, review
processes, dispute settlement, legislation, litigation, and techniques
for changing the system.

BROTHERS AND SISTERS:  A SPECIAL PART OF EXCEPTIONAL FAMILIES
Powell, Thomas, and Ogle, Peggy Ahrenhold, Brookes Publishing, Baltimore,
MD, 1985.
       Using personal accounts and a review of research, this book covers
the concerns and experiences of siblings of handicapped or chronically
ill children.  The practical suggestions and indices are especially
helpful.

                         PSYCHOLOGICAL/EMOTIONAL

SOME JUST CLAP THEIR HANDS:  RAISING A HANDICAPPED CHILD
Mantle, Margaret, Adama Books, 1985.
     Ms. Mantle, a British journalist, is the mother of two girls, one of
whom is mentally retarded.  Her book is a straightforward, well-written
account.  Ms. Mantle describes the difficulty she had in getting a
diagnosis for her normally-born daughter, and years that followed.  She
weaves in stories of other families of disabled children as she explores
the conflicting emotions and various ways parents cope.  She discusses
difficulties with family members, doctors, social workers, and school
personnel.  Here is a sampling of her chapter titles:  Major Crisis
Number One:  The Diagnosis; Why Kids in Our House Don't Call Each Other
Dummy; Pity:  The Gift Nobody Wants; The Look That Says, "You Poor Other
Person"; That's Emma's Sister, She's Retarded; Mobility:  A Mixed
Blessing; What Happens in a Marriage When the Baby's Broken?; When She
Leaves Home, Where Will She Go?; and A Light At the End of the Tunnel?.

OUR SPECIAL CHILD
Ross, Bette, Fleming H. Revell Company, Old Tappan, NJ, 1984.
     Despite its shortcomings, this book is a good practical guide to
raising handicapped children.  Written by the mother of a boy with Down
Syndrome, there is much of value to parents of IVH children who are
mentally handicapped.  The writing and organization of the book are not
the highest quality, and the discussion on faith will comfort some only
to annoy others, but the author's humor and sincerity make this book
worth reading.  Subjects covered include: deciding whether to bring your
baby home from the hospital; getting organized at home with your baby;
coping with grief and stress; parent-to-parent power; infant inter-
vention; preschool; how to help your child experience success; siblings;
the teen-age years and gearing up for letting go; choices in independent
living for the mentally retarded young adult; and spiritual growth.

A DIFFERENCE IN THE FAMILY: LIVING WITH A DISABLED CHILD
Featherstone, Helen, Penguin Books, New York, NY, 1980.
      This fine, beautifully written book should be read by all who work
or live with a handicapped child.  Its honesty makes it valuable and
compelling.  Written by a college-professor mother of a severely impaired
child, it discusses the fear, anger, loneliness, guilt, self-doubt, and
marital stresses inherent in life with a handicapped child.  Mrs.
Featherstone weaves the story of her own child between stories of other
families.  Reading this book helped me to clarify my thoughts about
having another baby after my child with IVH.

A HANDICAPPED CHILD IN THE FAMILY:  A GUIDE FOR PARENTS
Verda Heisler, Ph.D., Grune & Stratton, New York, NY, 1972.
     Written for parents of children with any type of handicap, this
useful book details how parents respond to raising a disabled child.  The
author, herself handicapped by childhood polio, is a psychologist.  Her
book is the product of a therapy group conducted for over two years with
parents of cerebral palsied children.  Subjects include: help with
emotional adjustment, the pain of empathy, and acceptance of hopelessnes
when the child is profoundly handicapped.

GROWING WITH A HANDICAPPED CHILD:  PARENTS SPEAK OUT
Turnbull, Anne and Turnbull, H. Rutherford, Charles E. Merrill
Publishing, Columbus, OH, 1978.
     This excellent book is comprised of essays written by parents who
are also professionals such as physicians, psychologists, social workers,
physical therapists, and teachers.  Various aspects of raising
handicapped children are discussed.  I recommend this book highly to
professionals, parents, and parent/professionals.  Essay titles include:
Parents of Mentally Retarded Children-Misunderstood and Mistreated; The
Parent-Professional Conflict; False Gods and Angry Prophets; Moving from
being a Professional to being a Parent- A Startling Experience;
Identifying the Enemy-A Parent's Complaint; Deinstitutionalization Jet
Lag;  A Society that is going to Kill your Children; and Family
Adaptation to the Handicapped Child and Assorted Professionals.

CHILDREN'S HOSPITAL
Anderson, Peggy, Harper & Row, New York, NY, 1985.
     An unforgettable reading experience, this book takes us through
places many of us have been.  The book deals with six patients, one of
whom is a preemie.  Memories come flooding back in sometimes sad and
other times joyful waves.  My child was in the hospital described in the
book, so every hallway mentioned brought back memories once painful, now
mellowed by time.
      --reviewed by IVH Parents member Kathy Rivera

                                  ETHICS

PLAYING GOD IN THE NURSERY
Lyon, Jeff, W. W. Norton and Company, New York, NY, 1985.
     This well-written, riveting book is about the ethical dilemmas often
summed up as the "Baby Doe" issue.  Subjects include, an overview of
infanticide; the history and present day practice; low-birth weight
infants and the handicap rate; the law and handicapped newborns; and the
sanctity of life versus the quality of life.

THE LONG DYING OF BABY ANDREW
Stinson, Peggy and Stinson, Robert, Little, Brown, Boston, MA, 1983.
     In diary form, the Stinsons tell the story of their very premature
(24 weeks gestation) son, Andrew.  The parents describe their loss of
control of Andrew's and their own lives, while enmeshed in NICU
technology.  The Stinsons ask probing questions about the ethics of
"salvaging" extremely premature infants, and the callous, reactive- type
medicine that is sometimes practiced.

A TIME TO BE BORN, A TIME TO DIE: Conflicts and Ethics in an Intensive
Care Nursery
Gustaitis, Rasa, and Young, Ernle, Addison-Wesley, Reading, MA, 1986,
$18.95 hardcover.
     This compelling book explores the issue of using the latest life-
saving technology when the burden of suffering outweighs hope.  Subjects
covered include:  how much choice do parents of handicapped newborns
have?; the long-term effects of prolonged, aggressive treatment; the
practice of performing painful medical procedures without anesthesia.
This book is highly recommended by IVH Parents member Helen Harrison,
author of The Premature Baby Book.

MIXED BLESSINGS:  INTENSIVE CARE FOR NEWBORNS
Guillemin, Jeanne and Holmstrom, Lynda, Oxford University Press, New
York, 1986, $29.95.
     More than 10% of all infants born in the U.S. spend some time in a
neonatal intensive care unit (NICU).  This excellent book analyzes the
NICU and the professionals who work there.  U.S. and foreign NICUs are
compared.  The infant patient is viewed both as a part of the NICU, and
as an individual.  Parents' needs are explored.  The dehumanizing aspects
of the NICU is analyzed.  Recommendations for policy changes are made.

THE YOUNGEST SCIENCE: Notes of a Medicine-Watcher
Thomas, Lewis, MD, Viking Press, New York, NY 1983.
     One of Lewis Thomas' collection of essays on medicine and
philosophy.  This eminent physician writes with elegance and grace.

WHEN BAD THINGS HAPPEN TO GOOD PEOPLE
Kushner, Harold, Avon Books, New York, NY, 1981.
     This well-known book has been a comfort to many.  Written by a rabbi
whose son died of a degenerative disease, it attempts to answer, "Why did
this dreadful thing happen?"  Chapter titles include: Why do the
righteous suffer?; The story of a man named Job; No exceptions for nice
people; God leaves us room to be human; God helps those who stop hurting
themselves; God can't do everything, but he can do some important things;
and What good then, is religion?.

MEDICINE AS A HUMAN EXPERIENCE
Reiser, David, MD, and Rosen, David, MD, University Park Press Baltimore,
MD, 1984.
     Required reading for an ethics and human values course at University
of Miami Medical School, this book discusses medicine and psychology,
physician-patient relations, medical philosophy, and the nature of
healing.  Professionals will benefit from this quick-to-read book.

                              CEREBRAL PALSY

HANDLING THE YOUNG CEREBRAL PALSIED CHILD AT HOME
Finnie, Nancie, E. P. Dutton, New York, NY  1975.
     This well-known book is a day-to-day guide for parents of children
with cerebral palsy.  Subjects include: basic principles of handling
children with cerebral palsy during: toilet training, bathing, dressing,
feeding, and carrying.   Suggestions about baby carriages, wheelchairs,
wedges, prone boards and other aids are made.

MANAGING PHYSICAL HANDICAPS
Fraser, Beverly, RPT, Hensinger, Robert, MD, Paul H. Brooks Publishing
Company, Baltimore, MD  1983.
     This useful book is about the rehabilitation of physically
handicapped.  Subjects include:  definitions and illustrations of normal
movement; physical therapy; questions and answers about severe
disabilities; secondary deformities; communicating with and handling the
severely impaired; and wheelchairs.  One of the appendices lists
manufacturers and distributors of prescriptive equipment.

A NEUROPHYSIOLOGICAL BASIS FOR THE TREATMENT OF CEREBRAL PALSY
Bobath, Karel, Spastics International Medical Publications, London,
England, 1980.
     This book, written by a well-known therapist who has developed a
neuro-developmental style of physical therapy, is for physical therapists
and orthopedists.  It discusses normal and abnormal development, and
defines cerebral palsy.  Other subjects include: tone and posture in the
assessment of cerebral palsy, and early recognition of cerebral palsy.

                            TECHNICAL/MEDICAL

BRAIN INSULTS IN INFANTS AND CHILDREN.
Edited by Hector James, MD, Nick Anas, MD, and Ronald Perkin, MD.  Grune
& Stratton, Inc., Orlando, FL, 1985.
     Chapters of interests to professionals and parents include "Neonatal
Intracranial Pathology and Ultrasonography," in which
intraventricular/subependymal hemorrhage is said to occur in 40-70
percent of premature infants less than 34 weeks of gestation.  The
chapter defines IVH, the classification by Grades 1-4, and illustrates
with ultrasound, CT scan and autopsy.

FOLLOW-UP MANAGEMENT OF THE HIGH RISK INFANT
Edited by Taeusch, H. William, and Yogman, Michael, Little, Brown and
Company, Boston, 1987.
     IVH Parents members Barbara and James McCauley wrote the chapter
"Continuing Care: Parents' Retrospective" in this book.  Other chapters
include: Epidemiology of Prematurity and Goals for Prevention, Major
Causes of Neonatal Mortality and Morbidity, Physical Therapy, Cognitive
Assessment, Intracranial Hemorrhage, Bronchopulmonary Dysplasia,
Environmental Interventions and Parent Grieving.

MANAGEMENT OF COMMON PROBLEMS IN OBSTETRICS AND GYNECOLOGY
editors: Mishell, Daniel Jr., MD, and Brenner, Paul, MD, Medical
Economics Books, Oradell, NJ, 1983.
     This book was written for obstetricians and gynecologists, but IVH
mothers who are contemplating another baby might be interested, too.  It
covers problems such pregnancy complications as incompetent cervix,
hypothyroidism, thrombophlebitis, urinary tract infections, diabetes,
hypertension, multiple pregnancy, preterm labor and delivery, Beta-
mimetics, chorioamniotis, post-term birth, intrauterine growth
retardation, premature rupture of membranes, placenta previa, abruptio
placenta, placenta accreta, meconium during labor, and vaginal delivery
following cesarean.
     Other topics of interest to professionals dealing with high-risk
mothers and the women themselves are: antepartum fetal evaluation, lung
maturity, glucocorticoids to induce lung maturity
and electronic fetal heart-rate monitoring.

BRAIN DAMAGE AND RECOVERY:  RESEARCH AND CLINICAL PERSPECTIVES editors:
Finger, Stanley and Stein, Donald,  Academic Press,
New York, NY, 1982.
     Written for neuro-researchers, this book is provocative and
heartening.  The subject of this collection of research studies is
regeneration or plasticity of the nervous system.  Included are: a
history of neurology, covering the antiquated "science" of phrenology,
Flourens to the present; a discussion of regeneration in the central
nervous system; "anomalous" growth after brain damage early in life;
physiological plasticity; fast- versus slow-growing lesions and
behavioral recovery;  environmental and experiential determinants of
recovery of function; and drugs and recovery.

EARLY BRAIN DAMAGE:VOLUME 1 RESEARCH ORIENTATIONS & CLINICAL OBSERVATIONS
editors: Almli, C. Robert, and Finger, Stanley, Academic Press, Orlando,
FL, 1984.
     This exciting and encouraging book, written for neuro-researchers,
is a collection of studies on early brain damage in children and animals.
Topics include: advantages and limitations of early plasticity; lesion-
induced neuroplasticity; early brain damage due to hypoxia; outcome of
perinatal asphyxia; behavioral results of cerebral insult in infancy;
ontogensis of functional asymmetry; effects of cortical lesions in
children in language and visual functions; early brain injury and
cognitive development and early-and long-term recovery from brain damage.

EARLY BRAIN DAMAGE: VOLUME 2 NEUROBIOLOGY AND BEHAVIOR
editors: Finger, Stanley, and Almli, C. Robert, Academic Press, Orlando,
FL, 1984.
     This collection of research studies is the companion to Volume 1.
Subjects discussed include: neuronal reaction to injury during
development; lesion-induced sprouting; early brain damage and time course
of behavioral dysfunction; functional development of the prefrontal
system; postlesion reorganization; bases of recoveries from perinatal
injuries to cerebral cortex; factors affecting behavior after early brain
damage; the effects of early environment on brain damage.

BRAIN INSULTS IN INFANTS AND CHILDREN
editors: James, Hector MD, Adas, Nick MD, Perkin, Ronald, MD, Grune &
Stratton, Orlando, FL, 1985.
     This collection of clinical essays was written to enhance the
neuroscientific knowledge of the primary medical caretakers of children
with brain injury.  Subjects of interest to IVH professionals and parents
include: cerebrovascular dynamics, impaired cerebrospinal fluid
circulation, normal cranial C.T. scans and ultrasonography in neonates,
Magnetic Resonance Imaging, acute management of seizures, ventilation,
and cerebral blood flow.  The chapter "Neonatal Intracranial Pathology
and Ultrasonography," states that intraventricular/subependymal
hemorrhage is said to occur in 40-70 percent of premature infants less
than 34 weeks of gestation.  This chapter defines IVH, the classificatio
by Grades 1-4, and illustrates with examples of ultrasound, CT scan and
photographs of injured brains (from autopsies).

THE EFFECTIVENESS OF EARLY INTERVENTION FOR AT-RISK AND HANDICAPPED
CHILDREN
editors: Guralnick, Michael, and Bennett, Forrest, Academic Press,
Orlando, FL, 1987.
     This long-needed volume begins with a framework for early
intervention, and moves to analyses of the effectiveness of such
intervention in children with various risk factors or handicaps.  The
role of parents, bimedical issues and nonstandard interventions, social
and emotional factors and training of early interveners is also
discussed.

DIAGNOSIS AND MANAGEMENT OF SEIZURES IN CHILDREN, Holmes, W.B. Saunders
Harcourt Brace Jovanovich, Inc., Orlando, FL 1987, $34.95.
    This book details the medical treatment of seizures with emphasis on
social and psychologic issues.  It includes clinical descriptions
and classifications.
CARE OF THE HIGH-RISK NEONATE, 3rd Edition, Klaus and Fanaroff, W.B.
Saunders Harcourt Brace Jovanovich, Inc., Orlando, FL 1986, $34.95.
    Step-by-step procedures for cardiorespiratory problems, thermal
regulation, feeding disorders, and more. New therapies and controversial
issues are discussed.

NEUROLOGY OF THE NEWBORN, 2nd Edition, Volpe, J., W.B. Saunders
Harcourt Brace Jovanovich, Inc., Orlando, FL 1987, $65.
      This text focuses on clinical evaluation and management of
neuorological problems in the newborn.  New material includes normal and
abnormal brain development, neonatal seizures, and neuromuscular
disorders.

THE DEVELOPMENTALLY DISABLED CHILD:  A MANUAL FOR PRIMARY PHYSICIANS
Keele, Doman, MD, Medical Economics Books, Oradell, NJ, 1983.
     This book was written for pediatricians or family physicians who
care for children with developmental disabilities.  Subjects include:
diagnostic overview and work-up; mental retardation; learning
disabilities; cerebral palsy; epilepsy; sensory impairments, and
integrating the care of the disabled into your practice.
     Useful appendices include a parent questionnaire, medical history
form, a teacher's rating scale, and sample achievement tests.

CHILDREN WITH HANDICAPS:  A MEDICAL PRIMER
Batshaw, Mark MD, Perret, Yvonne, Paul H. Brooks Publishing Company
Baltimore, MD, 1981.
     This book about the care and treatment of handicapped children is
written for parents.  Subjects include: heredity, birth defects and
prenatal diagnosis; problems of prematurity, feeding the handicapped
child; normal and abnormal development; cerebral palsy; epilepsy; sensory
impairments; living with a handicapped child; and ethical dilemmas.

ISLER'S POCKET DICTIONARY OF DIAGNOSTIC TESTS, PROCEDURES & TERMS
Isler, Charlotte, RN, Medical Economics Company, Oradell, NJ, 1982.
     This useful little book is a dictionary of diagnostic terms,
laboratory tests, and procedures.  It was written for medical
professional, but would be handy for a parent to have in the NICU.

GRAY'S ANATOMY
Gray, Henry, Bounty Books, New York, NY, 1977.
     This stunningly illustrated classic guide to general human anatomy
is useful to those parents who want an understanding of the body.

THE BRAIN
Restak, Richard, MD, Bantam Books, New York, NY, 1984.
     This well-illustrated book, written for the layman, is a primer on
how the brain works. It's from the public television series, "The Brain."

BASIC HUMAN NEUROPHYSIOLOGY
Guyton, Arthur C., MD, W.B. Saunders Company, Philadelphia, PA, 1981.
     This is a basic medical textbook on neurophysiology (brain
structure).  Topics include: transport of ions through cell membranes
excitation and rhythmicity, contraction of muscles, motor functions,
cortical and cerebellar motor functions, cerebral cortex-intellectual
functions, and eye-neurophysiology.

STEDMAN'S MEDICAL DICTIONARY  23 edition
Editor:  Cutler, Anne, Williams and Wilkins, Baltimore, MD, 1976.
     This dictionary of medical terms, and vocabulary of medical words
can be useful to the parent of an IVH child, in the NICU and beyond.

THE MERCK MANUAL OF DIAGNOSIS AND THERAPY  14th edition
editor in chief:  Berkow, Robert, MD, Merck Sharp & Dohme Research
Laboratories, Rahway, NJ, 1982.
     An encyclopedic tome of medical diagnosis and therapy.  Written for
physicians, it is useful for those parents who want a reference for
illnesses and conditions.

                            MAGAZINES/JOURNALS

Exceptional Parent Magazine
(Children with Disabilities/Practical Information)
605 Commonwealth Avenue
Boston, MA 02215

Pediatrics
American Academy of Pediatrics
P.O. Box 927
Elk Grove Village, IL 60007
                                PAMPHLETS

Equals in this Partnership: Parents of Disabled and At-Risk Infants and
Toddlers Speak to Professionals.  National Center for Clinical Infant
Programs, 733 15th Street, N.W., Suite 912, Washington DC, 20005,
202-347-0308.
     Essays on parents dealing with their children, with professionals,
and with themselves.

DD: Terminology and Reference Guide to Developmental Disabilities.
Florida Developmental Disabilities Planning Council, 1317 Winewood Blvd.,
Building 1, Suite 309, Tallahassee, FL 32301, 904-488-4180.
     Designed for Florida's public servants, journalists and medical
personnel, this is a pocket-size primer on developmental disabilities.
Includes a glossary of terms and summaries of important state/federal
legislation.

First Steps: A Guide for Parents of Children with Developmental
Disabilities
Florida Developmental Disabilities Planning Council, 1317 Winewood Blvd.,
Building 1, Suite 309, Tallahassee, FL 32301. 904-488-4180.
     Another excellent publication.  Good advice for parents standing
bewildered at Square One.  Out-of-staters are invited to send for this
booklet and the one above.

A Guide to Health Care Coverage for the Child with a Chronic Illness
or Disability.
     The Center for Public Representation, a Wisconsin public interest
law firm, developed this $10 booklet.  Much information is specific to
Wisconsin, but the general information is helpful to anyone in the United
State who is responsible for health care of a child with special needs.
To order, contact Carol Huber, Project Director, Center for Public
Representation, 520 University Avenue, Madison, WI, 53703, 608-251-4008.